Noonan Syndrome Support - Ontario, Canada

Connecting People Living with Noonan Syndrome in Ontario

Members

Welcome!

Isn't it interesting how a syndrome, so numerically prevalent seems so hard to find?

Life with Noonan Syndrome and life in Ontario - two unique elements to form the basis of strong relationships.

Sign up, let us know who you are and what your life with NS, and in Ontario, is like.

Let's celebrate the things that make us who we are.

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Live Outside Ontario?

If you live outside Ontario, join anyways! It might be tough to join us for activities but if you can make it, please do. Not sure? Get in touch and let us know your concerns. You can email Robyn directly or get in touch through www.thesweetone.ca.
 

Summer's on its way

Can you believe summer is almost upon us? 

Thinking of planning a summer activity we can all take part in? Post it here! Meet some more families, renew some old acquaintances, have some fun!

Forum

GoC Disability Credit 4 Replies

Started by Robyn Ferrier in Financial Services. Last reply by KerryLynn DiLabiio May 6.

Hi

Started by KerryLynn DiLabiio in Introducing... May 5.

Hi! 4 Replies

Started by Karolle in Introducing.... Last reply by KerryLynn DiLabiio May 5.

my wee man!!!1

Started by tasha hall in Introducing... May 1.

Family Get Together 7 Replies

Started by Robyn Ferrier in Upcoming Events. Last reply by Karen Giugovaz Apr 30.

Latest Activity

Annie Chretien is now a member of Noonan Syndrome Support - Ontario, Canada
May 8
KerryLynn DiLabiio replied to Robyn Ferrier's discussion GoC Disability Credit
"have any of you applied for ODSP"
May 6
KerryLynn DiLabiio replied to Karolle's discussion Hi!
"ok figured it out lol. send you a email, slowly figuring out how to post :)"
May 5
Karolle left a comment for KerryLynn DiLabiio
"We should definitely get together! I'd love to meet you and talk!"
May 5

Help Needed!

Building this online community takes time and participants. We're small to start but we'll grow. Sign up and spread the word. Anyone can join - parents, friends, professionals. If Noonan Syndrome is in your life in some capacity, no matter how small, we'd love to have you here.
 
 
 

Blog Posts

Craniofacial Assistance Through the Government of Ontario

Hello all;

 

We are thrilled our daughter Emma was recently accepted into a program funded throught the Government of Ontario.  The program was initially started for cleft palate patients but has been expanded to include other syndromes such as NS.  She was referred through our pediatric dentist and accepted into the program through an examination at the clinic run through our local hospital.  Essentially they will follow her through years of development and will cover the…

Continue

Posted by Karen Giugovaz on May 1, 2012 at 9:41am — 1 Comment

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